Delilah Clarke
My Skin Hurts From the Smallest Touch. Please Help Me.
Hi... my name is Joyce, and I am only 11 years old.
I never imagined that one day I would have to ask strangers for help. I've always been embarrassed to show my skin because it is covered in painful wounds and blisters. But today, I have no other choice.
I was born with a rare condition called Epidermolysis Bullosa (EB), often known as Butterfly Skin Disease. My skin is so fragile that even the gentlest touch, a hug, or the friction from my clothes can tear it open and create new wounds. Every movement can be painful. Pain has been part of my life for as long as I can remember.
While other children run, play, and enjoy their childhood, I have to be careful with every step I take. My bandages must be changed almost every day, and those moments are some of the most painful I experience. Sometimes the dressings stick to my wounds, making me cry in agony. There are days when even getting dressed or trying to sleep feels impossible.
Besides the constant pain, this disease puts me at a high risk of serious infections, causes wounds that take a long time to heal, makes eating difficult because of painful sores, and requires continuous medical care. Pain medication, special non-stick bandages, wound care supplies, doctor visits, and nutritional support are all essential for me to keep fighting.
My family does everything they can to care for me, but we simply cannot afford the cost of my treatment anymore. Every month the expenses grow, and sometimes we are forced to choose between buying the medical supplies I need or paying for our basic household necessities.
I have been too ashamed to ask for help. I never wanted to burden anyone. I truly believed we could keep fighting on our own, but we can't anymore.
Today, with all the courage I have, I am asking for your help.
Every donation makes a real difference in my life:
❤️ $20 provides 7 full days of pain medication.
❤️ $30 provides 12 full days of pain medication.
❤️ $50 provides 19 full days of pain medication.
❤️ $100 provides 20 days of life-saving special bandages that protect my fragile skin and help prevent dangerous infections.
❤️ $250 provides 30 days of pain medication, 30 days of life-saving special bandages, and 30 days of wound-healing nutritional meals that help my body recover and fight every day.
No gift is too small. Every donation helps relieve my pain, protects my skin, and gives me hope for another day.
If you are unable to donate, please consider sharing my story. It may reach someone who can help change my life.
Thank you from the bottom of my heart for taking the time to read my story.
May God bless you and your family.
